Primary care at scale (PCaS) entered the lexicon of healthcare in the NHS in England over 10 years ago. It should be regarded as a set of principles rather than an organisational form, albeit when these principles are applied, a larger provider organisation often results. However, there are many ways of delivering PCaS.
Primary care at scale (PCaS) entered the lexicon of healthcare in the NHS in England over 10 years ago. It should be regarded as a set of principles rather than an organisational form, albeit when these principles are applied, a larger provider organisation often results. However, there are many ways of delivering PCaS.
It is well recognised that a predetermined ‘one size fits all’ approach to providing integrated care to populations with diverse needs rarely delivers the desired improvement in quality, safety and consistency in the outcomes of care for patients.
Therefore, any structures created to deliver PCaS should result from these functional principles and assessment of the needs of the population being served. Population health management is now the internationally recognised approach to this analysis of need.
This approach moves away from episodic care to managing the care of a population, utilising data that is also focussed on predictive and preventative care.
A cultural shift
PCaS is predicated on an ability to provide improved first contact care to a larger population than individual list-based general practice, but is more complex than just the aggregation of local practices.
Its purpose is to extend the provision of health and care services within a community setting through an integrated team-based approach. Many providers of primary care and other public services are usually incorporated into effective models of PCaS.
To be successful, a cultural shift is required by both clinicians and patients which changes the dependency on the GP being invariably the first point of contact and creates new models of care management.
Whole population budget
The last (but by no means least) core principle for PCaS is to improve the deployment of health and care resources (human as well as financial) and so reduce per capita costs of care.
This often requires the alignment of clinical and financial drivers through the management of a whole population budget. Entitling clinicians to take responsibility for the stewardship of resources usually results in improved utilisation and productivity. Also investing in value-based outcomes rather than the historical institutional focus on quality and safety at whatever the cost will reduce overall spend in healthcare services.
Ultimately, a PCaS organisational form needs to be ‘the right size to do the job’ and its size allows for a ‘one team’ approach to the provision of care to a defined population.
These principles should direct the core purpose of primary care networks (PCNs) as designed for the NHS in England. To do otherwise may result in PCNs simply trying harder at what has already failed in previous NHS reforms.
Control by letting go
Whatever the model(s) for delivering PCaS, policymakers need to learn the ‘art of control by letting go’ and empower the service to move away from a centralist approach. Enabling the freedom to make decisions at the right level creates the right environment for effective delivery and leads to sustainable system change.
Unfortunately, this has rarely been achieved in the past. There has too often been a malalignment of behaviours and incentives in the system and ‘engagement’ of the service in predesigned models of PCaS has failed. Only through the development of a consistent set of values and promoting co-production with the service can new models of care emerge.
Moving away from positional leadership to an approach of distributed leadership within a PCaS model also promotes an attitude of collaboration by the people doing the work. The liberation of the ‘leader inside’ the individual creates a more purposeful style of practice for improved provision of care.
Emerging operational change
The transformation from current primary care provision to PCaS can eventually be achieved through learning from the past, seeking knowledgeable advice and using an evidence base for reform.
Often, multiple small-scale redesigns over long periods of time involving a series of well managed sequential experiments is necessary. Reformers need to keep testing and prepare for feedback, mid-course correction and revision if the change is unproductive. Operational change should then emerge rather than be planned. Reformers should be prepared to forgive themselves when things go wrong, as no-one gets it right first time.
Initiating care reform programmes and, in particular, developing PCaS should start where the energy is and where people are ready for change. An incremental approach to implementation should then be taken.
Co-production and use of knowledge in the service is paramount in order to develop a feeling of ownership rather than engagement in someone else’s design.
The ability to deliver the principles and requirements of improved service delivery through a PCaS approach within PCNs is achievable. However, there may need to be a reset in future design. The current environmental factors and a contractual prescriptive approach may prove to be counterproductive to the ambition of the NHS Long Term Plan.
Dr Chi-Chi Ekhator is a GP based in South London and a GP Appraiser of NHS England. She is also Chair of Five2Medics, an initiative within Ascension Trust, born out of the desire to build wellness and resilience in communities facing disadvantage.
She spoke to Policy Analyst Lottie Moore about how the health sector must radically rethink the ways it engages with the wider social determinants of health inequality.
Good health is crucial to a good life, but it is not the only ingredient. Understanding how health fits into the wider frames of people’s lives is essential if we are to truly enable people to live the healthiest lives possible.
Dr Ekhator knows this first-hand. Working as a GP in some of the most disadvantaged areas of London, she understands the disengagement many people feel with their health services and is working to change the narrative.
The power of community
The Ascension Trust (AT) is a faith-based charitable organisation that seeks to harness and equip local communities to work together. The AT is the architect of the well-known initiative Street Pastors, in which local Christians across the UK serve as a presence on the streets to make them safer during the night-time economy. This model is now used within railways and emergency response settings. “We work with the national railways to cover areas which experience high numbers of suicidal incidents,” says Dr Ekhator. “Likewise in response settings, we send out trained individuals who respond to emergency situations to be a presence with victims and provide support to professional services.”
The key understanding behind this work is that local people know their communities best – better than the systems and structures that are set up to help them. Equipping these systems and structures to embed themselves within communities must be an exercise in learning from those already working on the ground.
“We need to understand fully the deeper challenges at play here,” explains Dr Ekhator. “We might keep sending generic reminders to a woman who doesn’t show up for her smear test. Why doesn’t she turn up? Because she’s on a zero-hour contract; she can’t afford to come. We are surrounded by poverty but we don’t see it.
“Understanding these nuances and bringing health messages into communities in trusted spaces by trusted voices is key.”
A new approach towards vaccine hesitancy
Dr Ekhator believes the Covid-19 pandemic has really revealed these knowledge gaps. “It is all well and good having Public Health England releasing messages and advice. But some of it is falling on deaf ears because people think ‘well I don’t trust you anyway so why should I listen now?’ The pandemic has actually given us scope to go into communities and speak to them and begin gaining trust.”
AT’s Beacon Project, commissioned by South East London NHS Clinical Commissioning Group is doing exactly this. The project is a 12-month initiative aimed at providing Caribbean and African communities in South East London with the ability to make informed choices, recognise myths and fake news, and ask the questions that help them understand what is happening. The project is working with local faith communities in areas that have traditionally been hard to reach through conventional methods.
“Vaccine confidence and uptake is a real trigger for anger at the moment,” says Dr Ekhator. “This project is an exercise in listening and saying “we care about you and we want to approach your health holistically – on your terms.”
The Covid-19 vaccine only works so long as it is taken, and while it is therefore currently in the collective national interest for more hesitant communities to take it, the question must be asked: since when has the health of these people been a priority?
“There is no point saying to people, ‘get the vaccine, but actually we don’t care that you’ve been smoking for twenty years and have mental health issues’ That is not an integrous way to approach communities who have been disadvantaged for so long.”
Dr Chi-Chi Ekhator, Chair, Five2Medics
The Beacon Project is therefore doing much more than just addressing vaccine issues, by providing communities with a trusted and safe place to talk, on their own terms.
For Dr Ekhator, it is about saying: “let’s not just talk about your health when there’s a crisis, but constantly. Let’s talk about blood pressure, diabetes and nutrition…about unpaid carers and under confidence. In many ways, it is a GP’s dream: being able to access hard-to-reach communities rather than sending a letter.”
A national strategy, locally delivered
Much more must be done to integrate health services into the wider tapestries of people’s lives. It should not be the sole responsibility of charities to pick up the pieces where government-funded systems are failing to reach people. It is for national governments to recognise that real change starts where people live, work and breathe. To ensure health systems can fully serve their communities, national government must first recognise the value and importance of community-led approaches.
As Dr Ekhator concludes, “health has to look different. We need to take health into our communities. We can’t expect communities to come to us. We have to meet people where they are at.”
Heatwaves are killing thousands every year – it will get worse
By Francesco Tamilia
The damage of heatwaves to human health, productivity and lifestyles is growing. This is primarily because of the increasing likelihood of heatwaves caused by climate change. What are the impacts of this silent killer and what can be done about it?
Seventy thousand people died during the 2003 heatwave in Europe – a fact that should pose frightening questions if scientific projections that suggest climate change will increase the frequency of heatwaves turn out to be correct. Yet, because the death toll and drastic impacts of heatwaves are not always so immediate and obvious, they rarely received adequate attention from policymakers and the public.
“When hot days come, people think it’s just time to go to the beach. They don’t think about the fact that heat can make people sick, it can kill them. Maybe it’s just human nature, but why doesn’t it spur public attention?” asks Kathy Baughman McLeod, founding member of the Extreme Heat Resilience Alliance (EHRA) and SVP and Director of the Adrienne Arsht–Rockefeller Foundation Resilience Center at the Atlantic Council. The EHRA, formed by more than 30 global organisations, seeks “to tackle the growing threat of extreme urban heat for vulnerable people worldwide”.
Of the impacts of climate change, heatwaves are considered to have one of the deadliest health impacts. According to The Lancet Countdown on Health and Climate Change 2020 report, “from 2000 to 2018, heat-related mortality in people older than 65 years increased by 57 per cent and, in 2018, reached 296,000 deaths. The majority of these occurred in Japan, Eastern China, Northern India and Central Europe.”
What exactly defines a heatwave? Because they can vary significantly depending on a range of factors such as humidity, heatwaves do not have a universally accepted definition. One of the most common definitions that is attributed to them relates to an intensity that exceeds a certain threshold (there is no worldwide accepted threshold) and a duration that lasts a certain length of time.
How heatwaves impact human health, and who is most at risk?
Experts in the UK and US have concluded that extreme heat can cause a variety of negative health impacts depending on the intensity and duration of the heatwave. Some research shows direct correlations between increasing heat and an increasing number of excess deaths, which often double on particularly hot days. The main causes of illness or death during a heatwave are cardiovascular, respiratory disease and heatstroke.
Other heat-related illnesses:
Heat exhaustion – the most common. It occurs as a result of water or sodium depletion, with no-specific features of malaise, vomiting and circulatory collapse, and is present when the core temperature is between 37°C and 40°C. Left untreated, it may evolve into heatstroke
Heatcramps – caused by dehydration and loss of electrolytes, often following exercise
Heat rash – small, red itchy papules
Heatoedema – dizziness and fainting, due to vasodilation and retention of fluid
Heatstroke – can become a point of no return whereby the body’s thermoregulation mechanism fails. This leads to a medical emergency, with symptoms of confusion; disorientation; convulsions; unconsciousness; hot dry skin; and core body temperature exceeding 40°C for between 45 minutes and eight hours. It can result in cell death, organ failure, brain damage or death
(Source: Heatwave Advice, Department of Health)
People most at risk are those over the age of 65, people with disabilities or pre-existing medical conditions and those working outdoors for long hours in non-cooled environments. Other factors that can increase risk include; limited access to green spaces, living in cities with high population density, living on a top floor and being homeless. Nowhere is immune to extreme heat but populations in the Europe and Eastern Mediterranean regions have been the most vulnerable of all the WHO regions, the 2020 Lancet report found.
People with chronic or severe illness are likely to be at particular risk, including the following conditions:
Respiratory disease
Cardiovascular and cerebrovascular conditions
Diabetes and obesity
Severe mental illness
Parkinson’s disease and difficulties with mobility
Renal insufficiency
Peripheral vascular conditions
Alzheimer’s or related diseases
(Source: Heatwave Advice, Department of Health)
2003 heatwave in Europe. Image courtesy of Reto Stockli and Robert Simmon, based upon data provided by the MODIS Land Science Team.
Other impacts of heatwaves
The impacts of heatwaves extend beyond people’s health; experts estimate that by 2030, lost productivity from heat stress at work, particularly in developing countries, will cost $4.2 trillion USD per year.
“Across the globe, a potential 302 billion work hours were lost in 2019, which is 103 billion hours more than were lost in 2000. Thirteen countries represented 80.7 per cent of the 302,4 billion global work hours lost in 2019,” The Lancet 2020 report found.
The 2003 heatwave was estimated to have cost £41 million in health-related costs and productivity losses in the UK alone. In the US, a 2014 study by economists Tatyana Deryugina and Solomon Hsiang looked at annual income data and daily weather data from 1969 to 2011 and found that years with more days above 59 F (15 C) are associated with significantly lower income per person: average per-day income declines by 1.5 per cent for each 1.8 F (1 C) increase in daily average temperature beyond 15 C (59 F).
Several studies have also found links between extremely hot days and the worsening of people’s mental health conditions. A study in Toronto associated the increased rates of emergency visits for mental health conditions to temperatures rising above 28 C (82 F).
Yet another equality issue
Like many public health issues, heatwaves do not impact everyone equally – they affect people of colour and lower socioeconomic status more than anybody else.
“The people contributing to it least are suffering the most. There’s a link between hot communities and trees. Low-income communities don’t have trees whereas suburbs do. Trees help keep the temperature down and, more importantly, they absorb pollution,” says Ms Baughman McLeod.
“By contrast, people of lower economic status and of colour are more likely to be living next to industrial complexes that are emitting pollution. Most of the time in those areas there are no trees that can absorb pollution and heat is a key component of that.”
This was confirmed by a 2018 paper in the US that found people living in less vegetated areas had a five per cent higher risk of death compared to those living in more vegetated areas. Scientists at the University of California in 2017 mapped racial divides in the US by proximity to trees. Results were clear: black people were 52 per cent more likely than white people to live in areas of unnatural “heat risk-related land cover,” while Asian people were 32 per cent more likely and Hispanics 21 per cent.
Heatwaves and climate change: a sign of what is to come
There are fingerprints of climate change all over the recent heatwaves. An overwhelming amount of scientific evidence suggests that climate change is already making heatwaves and extremely hot days more frequent and severe. The evidence also suggests that if immediate actions to reduce emissions are not taken, extreme weather events will become the norm. A 2019 report by the World Weather Attribution (WWA) found that the 2019 heatwave in western Europe “would have been extremely unlikely without climate change”.
More recently in 2020, Siberia hit a record-breaking temperature of 38 degrees celsius. Again, WWA found “with high confidence” that the January to June 2020 prolonged heat “was made at least 600 times more likely as a result of human-induced climate change.”
We must raise awareness
When Ms Baughman McLeod, along with international partners, decided to establish the Extreme Heat Resilience Alliance in summer 2020, their first priority was clear: raising awareness among decision-makers. “We found that heat was the place where there was not enough attention. I think it’s ironic that in 60 or 70 years of climate discussions, and we call it global warming, we’re not talking about heat. It’s killing more people than any other impact of climate change,” she says.
A report published in 2021 by the WHO concluded that public awareness of the health risk is relatively high in places that are regularly affected by hot spells. However, it also found that “the risk perception of heat among healthcare providers may be significantly lower than it should be, given the objective risks faced by their patients.”
Worryingly, the report also revealed poor levels of awareness of heat warnings among health professionals, including nurses in care homes, as well as a lack of knowledge of existing heat–health plans among hospital front-line staff.
Heatwaves are a silent killer, how can you solve a problem people don’t know about? In a landscape of crises, if something is not burning, people are not going to address it.
– Kathy Baughman McLeod, SVP and Director of the Adrienne Arsht–Rockefeller Foundation Resilience Center at the Atlantic Council.
How should we go about raising awareness and saving lives? The Extreme Heat Resilience Alliance believes that naming heatwaves can make a difference. Although Ms Baughman McLeod admits that this may not be as straightforward as naming hurricanes, she believes this can help save lives.
“We’re trying to build a framework that can be adapted at a local met service and the existing heat health warning systems,” she told Integrated Care Journal. “We’re piloting heatwave naming and we’ve put a science team together to help inform it. We’re also building a ‘how to name heatwaves policy’ toolkit for countries that we will take to the COP26 in Glasgow,” she adds.
Courtesy of Arsht–Rockefeller Foundation Resilience Center
It is now crystal clear that heatwaves are an international issue that is bound to worsen in the years ahead, causing tens of thousands of deaths. While heatwaves impact certain countries more than others, nowhere is immune. Policymakers and health professionals must close the current knowledge gap and put into place policies that safely protect the most vulnerable in our societies. As the chances of altering the global CO2 emissions fall year after year, more resources should also be dedicated to adaptation rather than mitigation.
It is now crystal clear that heatwaves are an international issue that is bound to worsen in the years ahead, causing tens of thousands of deaths. While heatwaves impact certain countries more than others, nowhere is immune. Policymakers and health professionals must close the current knowledge gap and put into place policies that safely protect the most vulnerable in our societies. As the chances of altering the global CO2 emissions fall year after year, more resources should also be dedicated to adaptation rather than mitigation.
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